Last week, Southport Town Hall and the Atkinson were ‘paused in purple’ to highlight Craniosynostosis Awareness Month, celebrating the recovery of 14-year-old Eden Barbé. Diagnosed with Craniosynostosis; a rare skeletal disorder affecting 1 in 2,500, from birth, Eden required extensive surgery from Alder Hey Children's Hospital to save his life.
I am delighted to report that Eden has since fully recovered, actively pursuing professional Ballroom and Latin dancing, while raising over £2,000 for the Alder Hey Children's Hospital for Eden's 10-Year' Cranioversary.'
In recognition of Eden's incredible achievements, Ebony; Eden's younger sister, presented Southport's first Craniosynostosis Awareness event, emblazoning the Atkinson and Southport Town Hall in 'advocacy purple,' highlighting the importance of Craniosynostosis awareness nationally.
It is a pleasure to support the Barbé family's continued campaign, and I wish Eden the very best following his full recovery.